Now I Know How To Spell Subglottic

20 Comments

A few weeks ago, Matthew and I penciled, no, more like cemented, this week into our calendar as our vacation week.  Unbeknownst to us, God had a reason for that.

This vacation finds us in the hospital with IV steroids pumping into Matthew’s body.  Wednesday night, close to midnight, his airways started to get worse.  We hopped into the van and started driving to the ER.  About ten minutes into the drive, Matthew mouthed the word “faster” to me and so I put the petal to the metal and accepted the challenge of driving as fast as I could without one worry of being pulled over.  Escorted, perhaps, but not given a speeding ticket.  I’ve never felt life hanging in the balance so palpably before, and I prayed my heavy foot would outweigh the looming reality that death was hovering.  God’s presence strengthened my shaking hands and churning stomach.

We made it and were whisked right into the ER where he was given a breathing treatment and steroids.  Four hours later, he was admitted.  Our first hospital vacation that doesn’t involve having a baby, began.  After having a CT scan of his neck, seeing a pulmonary specialist, ENT specialist and Rheumatologist, it is evident that our dear old friend Wegener’s Granulomatosis has said hello again.  Rarely does it move to the throat, but Matthew is a rare guy so it seems fitting.  Currently, he is on high doses of IV steroids to calm down the inflammation in the subglottic region of his throat (right under his vocal chords).  Technically, he has what is called subglottical stenosis , which is a lot of inflammation under his vocal chords, leading to obstructed airways.  It explains the loss of voice, steady worsening of symptoms, and hard-to-diagnose reason for his difficultly breathing.  There are a variety of treatment options, and we are currently working with the rheumatologist to decide which route to take.  It is not a quick and easy fix.  Hopefully he can be released soon to continue treatment at home, but for now we’ll enjoy the gentle beeping of hospital machines, the untimely drawing of blood and plastic dome-covered dinners.
August 20131

Throughout this experience, we’ve been overwhelmed by the love of family and friends.

Matthew encouraged me yesterday with Psalm 46 and these thoughts:

God is our refuge and strength, a very present help in trouble.  To the extent we suffer trouble, we experience God’s help.  We can not know God’s help unless we experience trouble.  Therefore, we will not fear.

 

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20 thoughts on “Now I Know How To Spell Subglottic

  1. Amy, I read this and burst into tears. Matt is one of my kids, so by proxy you and your kids belong to my extended family. I love reading your blog. It is funny, real & a lovely picture of life as I hope it should be. Glad you are making Weldon memories for another generation. My kids loved their times at the Weldon home. Count on my prayers.

  2. What a precious couple you guys are! Praying for you…

  3. Oh, praying for you guys! What an encouragement Matthew is, to share that scripture during his own time of trial. May the Lord continue to strengthen him (and all of you) spiritually, and I’m asking Him to make a way for physical healing as well.

  4. amy– please know you are in my prayers…wish there was more I could do, but this is such a very busy time for me….tell Matt “hey there” from Dave & I….

  5. Your heart is amazing and your faith is inspiring. Sending love, hugs, and prayers.

  6. Amy and Matthew your Florida relatives are praying for you. And for wisdom for those who are treating you.
    Erv and Cathi LeMand

  7. I have had a handful of surgeries for vocal cord paralysis and spent a good bit of time unable to speak myself. My life was never threatened though- I can’t imagine how scary that drive must have been. May you continue to rely on Him for complete healing!

  8. I am an old classmate of Corinne and I feel blessed and privilege that she shares your story with us. I will be praying for Matthew’s health. I do want to tell you how uplifted I just felt while reading your notes. No complaints from you, but glory given to God. You are both an inspiration. May you continue to know and fell God’s presence.

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  10. Dear Amy and Matthew,
    I do not believe it is a coincidence that Psalm 46 was our sustaining strength from the Lord when I was in hospital for two weeks with a similar condition. At first it was thought I had Wegner’s Granulomatosis but it was later narrowed down to MPA Vasculitis…high dosage of steroids and chemotherapy to drive it into remission. We appreciate what you are experiencing and will continue to pray for you and your precious children. You both look so cute in the hospital bed…I am sure you are an amazing blessing and inspiration to the staff caring for you. Psalm 46:10 – sometimes “being still” is the only option and it is then that He is able to remind us of His constant Presence. We love you! Cathy and Charlie

  11. Hi Amy — I went to high school with Matt’s dad, and I read about his illness on Facebook. I had never heard of Wegener’s, and I am so sorry that he is afflicted with it. It sounds unimaginably difficult! Thank God though that you live in an area with top-notch medical care nearby, and thank God that so many advances have been made in medicine. It is truly miraculous what they can do these days, and I hope one of those miracles benefits Matt.

    Warmest regards,

    Pat Biswanger

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